Children with Usher syndrome often are fitting with hearing aids at a young age or use other types of assistive listening devices. Some children are good candidates for cochlear implants, which can restore some or all hearing.
It’s recommended that children diagnosed with Usher syndrome learn American Sign Language (ASL) and Braille, which can help them communicate as the disease takes away their ability to hear and see.
Balance issues can be addressed through physical therapy and occupational therapy. Children can learn how to remain mobile in spite of their issues with balance.
For some patients, high doses of some types of vitamin A can be helpful in slowing the progression of the vision loss associated with Usher syndrome. This should only be given under a doctor’s guidance to avoid doses that are too high.