Treatment of Neurocutaneous Syndromes in Children
Specific treatment for neurocutaneous syndromes will be determined by your child's doctor based on:

Your child's age, overall health, and medical history

The extent of the condition

The type of condition

Your child's tolerance for specific medications, procedures, or therapies

Expectations for the course of the condition

Your opinion or preference

Since neurocutaneous syndromes are lifelong conditions that are not curable, the focus is on medically managing the symptoms. A child is best treated with an interdisciplinary team that may include the following healthcare providers:

Pediatrician/family practitioner

Neurologist. A doctor who specializes in conditions of the brain, nerves, and spinal cord.

Neurosurgeon. A surgeon who specializes in operating on the brain and spinal cord.

Orthopaedic surgeon. A surgeon who specializes in conditions of the muscles, tendons, ligaments, and bone.

Ophthalmologist. A doctor who specializes in conditions of the eye.

Nurse

Rehabilitation team (physical, occupational, speech therapy, audiology)