Your child’s doctor may work with a team of specialists to develop and deliver a treatment plan. For example, these specialists may include neurosurgeons, neurologists, orthopedists, ophthalmologists, endocrinologists, radiologists, geneticists, physical therapists, occupational therapists, and others.

Your child’s doctor may prescribe growth hormones to help boost their growth. This type of treatment involves injections with needles every day. It may help increase your child’s height, but they will probably still develop below-average stature, even with treatment.

Their doctor may also recommend surgery. For example, if your child’s bones are constricting their spinal cord or brain stem, a pediatric neurosurgeon may need to remove some bones. Surgery may also be used to help lengthen your child’s limbs and induce bone growth. But there are many possible complications involved in this type of surgery. It may involve multiple procedures and a long recovery period.

Your child’s doctor may also recommend other treatments and rehabilitative therapies to help relieve their symptoms, increase their independence, and improve their quality of life.