Prevention of Charcot-Marie-Tooth Disease
Although there is no cure for CMT at the present time, there are many therapies that can greatly improve life and function for CMT patients.
Physical therapy can maintain what movement, muscle strength and flexibility they have.
Many people benefit from occupational therapy which helps people accomplish the tasks of daily living with the use of assistive devices.
Bracing is another non-invasive form of correcting problems caused by CMT. Often gait abnormalities can be corrected by the use of either articulated (hinged) or unarticulated, molded braces called AFOs (ankle-foot orthoses). These braces help control foot drop and ankle instability and often provide a better sense of balance for patients.
Appropriate footwear is important for people with CMT, but they often have difficulty finding well-fitting shoes because of their high arched feet and hammered toes. Falls can generally be avoided by watching where one walks and by wearing appropriate footwear.
It is important for CMT patients to control their weight. Not only does extra weight make physical activity more difficult, but it also increases the stress on already compromised joints and muscles.
Patients should try to maintain as much strength and flexibility as possible. Generally, patients should consult a physical therapist or physician before beginning an exercise program, and avoid strenuous activity and overwork. Moderate activity and physical exercise can be beneficial, but patients must be conscious of their physical limitations.
Finally, stress management is important in maintaining a healthy body.
Any disabling condition can affect the way people think and feel about themselves, but having a chronic illness like CMT, which is often unseen, places stress on individuals and often causes depression. People with CMT can suffer from low self-esteem and relationships with others can be affected. Even when a person has learned to live with CMT, the progressive nature of the disorder may bring about more loss and the grieving process can begin again.