Symptoms of Von Hippel-Lindau syndrome
Sometimes von Hippel Lindau disease has no symptoms. When it does have signs, they vary from person to person and depend on the problems caused by the disease. These symptoms usually do not mean you have VHL. However, it is important to discuss any symptoms with your doctor, since they may signal other health problems.

1. Pheochromocytoma Symptoms
Pheochromocytomas may cause symptoms that are like what you feel in an emergency ("fight or flight") situation. These include:

High blood pressure, either all the time or just sometimes
Sweating
Headache
Rapid or irregular heartbeats
Feelings of anxiety, panic and fear
Pale skin
Dizziness or lightheadedness when you stand
Tremor
Weight loss

2. Hemangioblastoma Symptoms
Symptoms of hemangioblastomas vary depending on their location.

__Cerebellum
Difficulty walking and with muscle coordination
Dizziness
Headaches
Double vision
Vomiting

__Spinal Cord
Decreased feeling in the arms, legs and body
Weakness
Difficulty walking
Difficulties with bowel and bladder function

__Brain Stem
Decreased feeling in the arms, legs and body
Walking difficulties
Swallowing difficulties
Headaches
Poor coordination