Can myelofibrosis cause weight loss and shoulder pain symptoms? Health Consultation Description: Hi Doctor. M7 65 yr old husband was diagnosed in 2012 with Myelofibrosis. He s been on thalidomide for 16 months. It had stem the progression of the condition. But he is experiencing strong inflamation in his feet and calves now . Pain in left shoulder sharp loss of weight. Are these symptoms of end stage ? He was diagnosed 5 years ago. Please advise.

Myelofibrosis treatment, myelofibrosis management Health Consultation Description: My husband has been diagnosed with Myelofibrosis. He presented with weight loss & tiredness. Originally he had an enlarged spleen and abdominal mass. We have been working for 3 months on a nutritional therapy and a recent thermal scan showed no activity around the mass. His haemoglobin & platelets are very low, although his white blood cells are within the norm. We are just about to be offered a treatment - what would be the best option - are there any vitamin/nutritional therapies we can work with that will also help?

How do I know if I have myelofibrosis? Health Consultation Description: THINK I HAVE GOUT IN BOTH BIG TOES AND WANTED TO KNOW IF THIS COULD BE A SIGN OF MYLOFIBROSIS GIVEN I WAS DIAGNOSED WITH MAYBE HAVING ESSENTIAL THROMBRO. 10 YEARS AGO BUT DOC WAS NOT QUITE SURE GIVEN MY PLATELET NUMBERS GOUT SYMPTOMS ARE ONLY SYMPTOMS., AND WONDERING IF THIS IS A SIGN OF MYLOFIBROSIS

Treatment for decreasing bone marrow size due to myelofibrosis Health Consultation Description: My father age is 64 name AAAAA before we check up they diagnosis as mylofibrosis at that time born marrow size is increace but after starting medicine it is decreace but 300 gm bottle blood we use in one month on his body, we use blood on his body each month so plz tell me any solution for this diease and any tretment available and also explain me bone marro transplant also

Myelofibrosis questions and answers, myelofibrosis treatment Health Consultation Description: My husband had his spleen removed two days ago. He has myelofibrosis and the spleen was removed after 43 blood transfusions. He was diagnosed in March 2012 and is 66 years old. When they released him from the hospital his scrotum was and is the size of a canteloupe and the penis is twisted and huge. Everything is red from the balls to his belly button. Should he take a lazicks? tablet that his oncologist/hemotologist gave him between blood transfusion so he would get rid of excess fluid?

Natural home remedy for treatment of mylofibrosis Health Consultation Description: I'm taking Jakafi 20mg for Mylo-Fibrosis.twice daily. How important is this Drug? My Doctor told me --Takeit or Die

What is probable prognosis for myelofibrosis? Health Consultation Description: I was diagnosed with polycythemia Vera last May. I go monthly for my blood and phlebotomy. My platelets have been low for last 5 months which I was not told until July when it was 30. At that time the Dr. Wanted to do another bone marrow. It came back with myelofibrosis, so if I am reading correctly my case would be more serious since I have all three issues. What will happen now? Is there no proactive treatment? Do I just wait? I would like to know a real prognosis? Thank you.

Myelofibrosis alternative treatments, myelofibrosis home remedy Health Consultation Description: Hi. Are there any alternative or complementary treatments for myelofibrosis. I am enquiring on behalf of my mother who is currently taking hydroxyurea. Presently her white blood cell count is low and I wanted to find out if it is worthwhile her taking something to boost her immune system as she will be travelling. I was thinking of the herb astragalus and some vitamin C. Can you advise? Thanks

Belly drain in stomach and lung due to myelofibrosis Health Consultation Description: My mother is 73 and has Myelofibrosis. She was diagnosed approx 16 mo ago and told life expt of 2yrs. She has had a perminant belly drain that has been removed due to the drain clogging. Her left lung now has a perminant drain & there is talk of another drain for her other lung. As you can understand,I don't alwasys get the answers to my questions from her. There isn't much information about this disorder and just woundering about all the fluid loss with draining. I just want to know if possible, Is she deminishing faster than expected or is all the fluid draining normal?

Mouth ulcers and diarrhoea when on remedy for myelofibrosis Health Consultation Description: My husband was diagnosed with Myelofibrosis in July 2011, since then he has had lesiions removed from his bowel with the loss of 50cm. He has also had bladder cancer which was treated with BCG. He is taking Hydrea for Myelofibrosis & is now on fortnightly transfusions. He is getting mouth ulcers, diarrhoea occasionally& his shortness of breath & fatigue. What else to we have to look forward to????

What is the difference between myelofibrosis and leukemia? Health Consultation Description: Has any one heard of myelofibrosis? My husband died of this in '04, It was so scary. He had 4 units of blood every week for 3 yrs, also platelets. I've still never understood the difference between this and leukemia?