Health DescriptionHealth Consultation Description: I have been diagnosed with SLE:
Systemic Lupus Erythematosus, but for the moment it remains cutaneous. What are the chances for the disease to spread and attack other tissues? And if that does happen, is there any medication that can prevent the disease from permanently damaging the organs?
Expert ReplyHealth Consultation Description: I have been diagnosed with SLE: Systemic Lupus Erythematosus, but for the moment it remains cutaneous. What are the chances for the disease to spread and attack other tissues? And if that does happen, is there any medication that can prevent the disease from permanently damaging the organs?
Condition analysis:
In some patients with cutaneous lupus, it does also turn into systemic lupus. Most cases of systemic lupus are mild to moderate and are controlled by medication and lifestyle changes. The majority of people with systemic lupus will live a relatively normal life span if they follow their treatment regimen (90%+). You said you have been diagnosed with systemic lupus. That means it is more than cutaneous. Many patients have both.
The medications which control lupus are immunosuppressive drugs. Prednisone is the first line of defense in calming a flare, or period of disease activity. But prednisone can cause some problems at high doses and if taken for long periods of time. Most of us take hydroxychloroquine (Plaquenil) twice a day for life. This is preventive. For many patients the hydroxychloroquine is enough. If you have organ issues, then additional immunosuppressive drugs will be prescribed depending on what organ is involved.
Instructions:
Lifestyle choices that help are:
1. Eat a nutritious, balanced diet that is high in fruits and vegetables (at least 5 servings a day) and low in animal fat. Most of the time, avoid highly processed foods or fast food.
2. Get some physical exercise on a regular basis.
3. Learn stress management. Yoga, Tai Chi, meditation are all good tools.
4. Learn about lupus so you can better manage it.
5. Develop healthy and open communication with your physicians.
6. Follow your treatment regimen and don't be afraid to ask questions.
7. Talk to others with lupus. I am 56, have systemic lupus with organ involvement, and lead a very full and happy life. :-)
8. Stay out of the sun PERIOD!